Intergenerational Facility Alternatives: Transitioning Care Options for Aging Parents and Children with Autism

Research Article | DOI: https://doi.org/10.31579/2767-7370/020

Intergenerational Facility Alternatives: Transitioning Care Options for Aging Parents and Children with Autism

  • Benjamin Chmieleski ID 1
  • Hallie Wolf ID 1*
  • Dr. Jeanneane Wood-Nartker ID 1
  • 1 Central Michigan University, USA.

*Corresponding Author: Hallie Wolf. Central Michigan University, USA.

Citation: Benjamin Chmieleski, Hallie Wolf, Jeanneane Wood-Nartker, Intergenerational Facility Alternatives: Transitioning Care Options for Aging Parents and Children with Autism, J. New Medical Innovations and Research, 2(4): DOI: 10.31579/2767-7370/020.

Copyright: © 2021 Hallie Wolf. This is an open-access article distributed under the terms of The Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited.

Received: 25 June 2021 | Accepted: 08 July 2021 | Published: 11 August 2021

Keywords: autism; assisted living; aging; intergenerational; care; ADA

Abstract

Purpose: The objective was twofold: 1) summarize research-informed environmental characteristics into Mostafa’s seven ASPECTSS™ criteria for people who are aging, and for children who have autism, and 2) apply those characteristics within the context of a Green House planned intergenerational facility providing support to adult child with autism, and their parent(s). 

Background: The rate of Autism Spectrum Disorder (ASD) diagnoses is increasing, making it important to design spaces for people with ASD. Approximately 85% of children with ASD live with their parents (Mykyta, 2012). Ahrentzen & Steele (2010) identified the need to develop housing options for people with ASD. 

Method: Design considerations from a literature review were organized into two tables: 1) aging adults and 2) people who have ASD.  Shared characteristics were placed into a third table using Mostafa’s seven ASPECTSS™ criteria, and then applied to the intergenerational facility plan to demonstrate the effectiveness of intentional planning by caregivers and the design community.

Results: When integrating Mostafa’s ASPECTSS™ framework, and the intergenerational Green House Model, the application of design choices within housing demonstrates that appropriately designed space can positively impact persons and families with autism, regardless of age.

Conclusion: Findings show numerous overlapping design criteria for people with autism and aging adults that can lead to effective environmental solutions for both. This facility type has the potential to minimize family fracture since aging parents are supported in their ability to care for their child with autism. 

Introduction

Autism

In the U.S. today, 1 in every 54 children are diagnosed with Autism Spectrum Disorder (ASD) and the Center for Disease Control and Prevention (CDC) estimates that there are currently 5.4 million adults with autism in the U.S. This societal trend shows the need to identify sooner rather than later, solutions that provide housing for families that address the needs of persons with ASD so they are prepared to provide for transitions in housing across the lifespan (C.D.C., 2020; Maenner, M.J., Shaw, K.A., Baio, J., et al., 2016). 

Autism is considered a broad spectrum disorder that affects individuals in varying ways. Autism’s core symptoms include social communication challenges, e.g., verbal and nonverbal, and restricted repetitive behaviors. For example, they may not understand or appropriately use: 

spoken language (⅓ are nonverbal), gestures, eye contact, facial expressions, tone of voice, or expressions not meant to be taken literally. Additional social challenges include recognition of emotions/intentions in others, recognition of one’s own emotions, expressing emotions, seeking emotional comfort from others, feeling overwhelmed in social situations, or taking turns in conversations. Restricted and repetitive behaviors vary greatly across the spectrum and may include repetitive body movements, repetitive motions with objects, or ritualistic behaviors such as lining up objects. These differences make it difficult to design one solution for all people with autism knowing that a solution that supports one individual may be a barrier for another. However, the characteristics identified in the literature as being most relevant to people with autism are often also effective universal design choices for people who are neurotypical, e.g., views to the outdoors, levered hardware, and safe spaces (CDC, 2020).

People with ASD are highly sensory and can become overwhelmed by artificial lights, loud noises, and overstimulation. When experiencing unfitting stimulation levels, children with ASD can exhibit violent outbursts in response to difficulty in processing the sensory environment, showing a direct link between wellbeing and the built environment. General agreement in the literature review shows that the sensory environment, with its colors, textures, patterns, lights, shapes and spatial qualities, plays a role in the disorder. It is possible to address these behaviors through planning (Maenner, M.J., Shaw, K.A., Baio, J., et al., 2016). One thing that is clear is that persons with ASD experience built environments very differently from most users, and that increased knowledge in this area can impact them across their entire life

As a general rule, most children with autism live in the home of a parent or other family member, with parents most often functioning as their caregiver (Ahrentzen, 2016), with as high as 85% reported living with parents (Mykyta, 2012). As caregivers age and need additional support, they often wonder how they will provide care for themselves, let alone providing care for someone on the spectrum. As a result of this aging process, the demand for housing accommodation for people with ASD who reside with aging caregivers is projected to rise considerably (Ahrentzen & Steel, 2009). Traditional alternative solutions have often involved the addition of in-home staffing or placement of their children in group home care settings (Gaines et al., 2016), developmental centers, nursing homes or intermediate care facilities. Only recently have families and design professionals begun to advocate for new designs in the development of alternative residential options for adults with ASD (Ahrentzen, 2016; Ahrentzen & Steel, 2009). Although the authors recognize that there cannot be one perfect residential solution to meet the differing needs of people on the spectrum, the intergenerational solution presented below is one accommodation that addresses a unique niche.

One architect who has worked to develop effective characteristics for educational and living environments for people with autism is Mostafa (2014). After looking at common sensory environment problems, she developed the Autism ASPECTSSTM Index and seven principles –Acoustics, SPatial sequencing, Escape space, Compartmentalization, Transition zone, Sensory zoning, and Safety – as a design tool to enhance the built environment for people with autism (Mostafa, 2014). When the ASPECTSS™ framework is applied within the environment, spaces are not only more sensitive to their needs, but also can be more enjoyable, multifunctional, and accessible for everyone.

Providing a Solution

Most design information available to designers and architects focus on the physical needs of people with disabilities and a typical aging population, with growing advocacy for adults with neurobiological conditions (Ahrentzen & Steele, 2009). Although studies have examined characteristics of effective environments for aging adults (van Hoof, Kort, van Waarde & Blom, 2010; Wood-Nartker et al., 2019), and of children with autism, few studies have examined effective housing and living environments for adults with autism (Ahrentzen & Steele, 2009; Gaines et al., 2016). Ahrentzen & Steele relate the housing needs for adults with autism to the development of residential care over the last five decades to that of designing for eldercare. Initially, it was difficult to locate an option that was not a nursing home or residence in homes of their adult children. Today, the options for aging adults are vast, clarifying the need to forge a similar path for people on the spectrum. What is clear for both older adults and people with ASD is that it can be difficult for the person to easily adapt to the environment, and so the environment must adapt to their specific needs. This makes it important to connect the requirements of aging adults (in this case, people who are also caregivers for their children with autism) and people with autism (in this case, people who have been provided care by their parents) to specific design solutions. Within this article, this has been done in two ways. The first is to summarize research-informed environmental characteristics using Mostafa’s seven ASPECTSS™ principles for people who are aging, and for children who have autism. The second is to apply those characteristics within the context of a Green House planned intergenerational facility that provides support to adult child with autism, and their parent(s).

The development of a housing approach that looks to intergenerational care could positively impact the lives of families who have members with autism. Traditionally, we think of children growing up and moving away from their parents, although this is not often how life plays out for many children with autism. As their parents age and require assistance themselves, for individuals with ASD who still require daily assistance, this would mean a separation from the family unit and the destabilization of previously established care routines. For the child who has autism, an optimal and focused design that they become familiar with early in life can assist in minimizing problems later that could result from the need to move, which could debilitate these residents who need stability and consistency in their lives. Effective and intentional design is also important for their caregivers (parents) since their quality of care can be supported by the environment. The more that the environment (and on-site caregivers) can serve as a support for parents, by providing opportunities for respite and restoration, the more likely they will be able to continue to provide stability and supported care for their adult children with autism (Ahrentzen & Steele, 2009).

Therefore, as the family itself ages, it is necessary to consider long-term housing options that support a range of needs. The creation of a Green House planned intergenerational facility that allows people with ASD to attend a childcare center as children, live independently in assisted living in the same facility as their aging parents when their parents need assistance with care, and then age in place as they become elderly and require even more assistance with daily living (ADLs), is a care concept worth exploringThis idea can provide crucial supports while maintaining strong relationships with friends, family, and staff. When considering children with autism, the intergenerational model becomes particularly important as it offers opportunities for children to become accustomed to the facility at a young age where they can be introduced to a sense of structure and routine. This improved familiarity with the facility could minimize difficulties involving transition to the facility should future residency within the intergenerational facility become a viable option.

Green House Model

The Green House planning concept, developed by Dr. Bill Thomas, is a newer approach to designing effective housing for older adults. In this housing approach, residents live in small-scale, self-contained home-like environments termed Green Houses that are designed for 10 or fewer individuals, as shown in Figure 1. 

Figure 1: Green House Model Example.

This plan, developed by one of the authors, integrated characteristics particular to the Green House model.  For example, each home contains private bedrooms with attached baths, as well as communal space including a kitchen, dining room, and living room. The Green House concept also seeks to change the administrative functions of elder living which now would take place in an off-site or remote location. Visible aspects of institutional care, such as nursing stations or medical carts, are taboo. Instead, staff members serve more holistic roles, taking on cooking, housework, and general socialization positions alongside typical nursing care. The main goal of the Green House model is to improve the quality of life for residents through environmental changes, increased family and staff involvement, and personalization methods such as using the residents’ own furnishings and belongings within the design (Cohen et al., 2016). To adapt this intergenerational space to the needs of people with ASD and neurotypical aging adults, there was a conscious choice to create a non-institutional environment that incorporated residential characteristics in the commercial grade furnishings, finishes, accessories and lighting selections. 

Routine and predictability are not typical behaviors of people with ASD, although they are needs the children have. Therefore, it would be beneficial to provide environments that promote these behaviors across the age continuum. When childcare and assisted living areas are integrated within a singular facility, routine and normalcy can be established in one environment which transitions with the individual (and parents) as they age. 

Merging principles from Thomas’ Green House model and Mostafa’s ASPECTSS™ model created the foundation from which this new housing norm and effective environments were planned to meet the needs of individuals with autism, both as children, and as young/aging adults. Research-informed recommendations were gathered from a literature review in order to create effective environments for their special needs at all stages of life.

ASPECTSS™ Framework

Acoustics

Mostafa’s ASPECTSS™ framework highlights the characteristics that should be focused on when designing centers for people with ASD. Due to the potential of hyperstimulation in individuals with ASD, the acoustical environment should be planned in such a way to minimize background noise, echo, and reverberation (Mostafa, 2014). The degree of acoustical control depends on the specific individuals who will be using the space, and this can vary greatly depending on factors such as planned activities in the space, skill level, and the severity of ASD. Acoustic baffles and reverberation mitigate ambient sound level and echo. Addition of industrial grade drywall, with three layers up to six feet high (kickable range) helps to minimize construction costs associated with replacement due to aggressive behaviors, and also to reduce sound transmission between spaces (Warman, 2019). In addition to acoustic considerations, research suggests that all senses should be considered when designing for people with autism (Clouse et al., 2019; Gaines et al., 2016). As such, design implementations that relate to any of the senses will be categorized under Acoustics (senses) for the sake of applying this model. Selections such as neutral and soft colors help to minimize over-stimulation within the environment. To reduce glare, indirect and diffuse lighting can be specified along with matte, non-reflective finish surfaces to minimize visual simulation. Individually controlled climate control systems and operable windows cater to individuals with hyper- and hypo-sensitivity to temperature. Additionally, higher ceilings in public areas help encourage people with autism to look up to break their habit of looking down and focusing on minute objects, promoting socialization (Mostafa, 2014).

SPatial Sequencing

SPatial sequencing proposes that areas are organized in a logical order to promote one-way circulation whenever possible. This is proposed due to the nature of ASD and a desire for routine and predictability, which can be improved by seamless transitions between spaces with different functions. Spacious areas promote socialization among people with ASD, while circulation spaces replace corridors to allow for adequate personal space. Rooms and spaces should be designed to have clear identity and purpose, while loud and quiet spaces should be remote from one another. Walls and visual partitions can aid in dividing rooms to promote organization of activities and events. Moveable furniture that can be regrouped according to the needs of a planned activity allow flexible modifications that cater to the needs of specific individuals (Mostafa, 2014).

Escape Space

Escape spaces can provide a place of retreat and respite for users experiencing overstimulation in the environment. Escape spaces can either take the form of a designated area in a room or entire rooms within larger buildings, as shown in Figure 2. 

Figure 2: Corridor Escape Space

 

Note: Public corridor space located in the Faison Center in Richmond, VA.

In both cases, the escape space should allow for the proper customized sensory input needed by each user (Mostafa, 2014).

Compartmentalization 

Compartmentalization is the process of dividing a room into areas, each intended for a specific task. The task should be clearly defined and have the proper stimulus qualities to best facilitate that activity, as shown in Figure 3. 

Figure 3: Spatially Sequenced Furnishings within a Classroom.

Note: Classroom space located in the Faison Center in Richmond, VA.

It is not necessary that the separation of space be defined by architectural characteristics such as permanent walls, but instead can be introduced via furniture arrangement, dividers, or variations of lighting and floorcovering. This, in turn, allows the spaces to be flexible and tailored to the specific needs of diverse users (Mostafa, 2014).

Transition Zones

Transition zones aid in the effectiveness of both Spatial Sequencing and Sensory Zoning (to be defined). The purpose of a transition zone is to allow the user to recalibrate their sensory stimulation level when moving between areas of differing stimulus levels. These transition zones are also safe spaces to facilitate socialization, as shown in Figure 4 (Mostafa, 2014).

Figure 4: Example of Transition Zone.

Note: Public corridor space located in the Faison Center in Richmond, VA.

Wide entryways with full-sized doors and operable sidelight windows reduce restrictiveness in transitioning between spaces and act as space for socialization. Reception areas allow for transition between exterior and interior areas. Awnings can achieve the same effect for outdoor building entrances (Gaines et al., 2016).

Sensory Zones

Zones within an interior environment should be organized according to their sensory quality as opposed to the neurotypical approach of 

functional zoning. For example, noisier spaces or “high-stimulus" zones include areas where physical activity might occur such as a corridor or playground. “Low-stimulus” zones include quieter areas geared towards activities such as reading and working on a computer (Mostafa, 2014). When spaces are organized according to sensory needs instead of function, they should focus on the desired activity and sensory levels and be clearly defined , e.g., carpet squares, colored floor tape, or screens, as shown in Figure 5 (Gaines et al., 2016). Figure 5 shows how quiet teaching/learning spaces have been separated from larger, noisier play spaces.

Figure 5: Classroom with Diverse Work Areas and Stimuli.

Note: Classroom space located in the Faison Center in Richmond, VA.

Safety

Research shows that injury and mortality rates are higher in individuals with autism. As such, safety is essential when designing environments for people with ASD (Svend, 2013). As shown in Figure 4, design suggestions for furniture, finishes and equipment, such as use of robust materials, lack of sharp edges and corners, and choking hazards, as well as proper management of hot water via safety fittings should be considered. Windows should be specified and installed with child-proof controls (Mostafa, 2014). Larger furniture and fixtures can be secured to floor or walls (Gaines et al., 2016). Multiple layers of drywall increase durability in case of aggression. Perimeter fences for courtyard use also ensure safety outdoors (Warman, 2019). Designing spaces using this proposed framework can help to create safe, suitable environments for people with ASD.

Beyond the design suggestions specifically targeting educational environments in Mostafa’s ASPECTSS™ framework (2014), additional research provides insight into home environments for users with autism (Gaines et al., 2016). As such, these suggestions have also been incorporated into the intergenerational facility. 

Environments Serving Children with ASD 

In this intergenerational facility, the educational child daycare serves as a transition zone for individuals with autism to become familiar with the facility at a young age. As these individuals gain familiarity, the potential stress that could occur when there is a need to transition to permanent residence in the facility as a family unit may be eased. The literature review provided design characteristics that were beneficial to children with ASD, as shown in Table 1. For example, within the daycare, it was important to develop appropriate instructional, independent, recreation and leisure areas in each structured environment. In a classroom setting, these areas may include a small group work area, an independent work area, a 1:1 work area, a play/recreation/ leisure area, sensory motor area and a crash/quiet area (Kanakri et al., 2017). Modifying the design of a classroom for students has been shown to improve learning performance, reduce negative behaviors, and increase attention span (Gaines et al., 2016). Creating a learning environment that regulates sound, light, and provides a structured environment with limited or well-controlled sensory stimuli helps students learn and remain focused. Some environmental factors that cause distraction and lead to sensory triggers are background noise, glare, open storage systems, clutter, and large numbers of students and teachers. Environments that only have artificial illumination and lack natural light increase stress and discomfort (Shabha & Gaines, 2013).

  
AuthorDesign Consideration

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Mostafa, 2014

Space plan to minimize background noise, echo, and reverberation.

 

Organize areas in logical order, promoting one-way circulation
Use light and neutral color selections to minimize over-stimulation
Incorporate indirect and diffuse lighting 

Select matte and non-reflective finish surfaces

 

Use walls and visual partitions as an aid for division and organization of rooms 

 

Specify movable furniture which can be regrouped according to the needs of the activity
Give rooms and spaces clear identity and purpose
Designate specific areas in a room or entire rooms as escape space
Include reception areas between indoor and outdoor areas
Allow for customization within these spaces according to the needs of the user
Use covered awnings in outdoor spaces
Clearly define zones through carpet squares, colored floor tape, or screens
Provide wide entryways with full sized doors and operable sidelight windows
Avoid sharp edges and corners
AuthorDesign Consideration
Mostafa, 2014Consider proper management of hot water via safety fittings which are child-proof
Organize “high stimulus” and “low stimulus” zones
Separate loud and quiet spaces
AuthorDesign Consideration

 

 

Warman, 2019

Specify multiple layers of drywall 
Specify movable and adaptable furniture to create boundary-defined areas
Specify sound absorbing panels
Stagger doorways within corridors to eliminate direct pathways for sound travel
Cover light fixtures and sprinkler systems for safety
Specify hard surfaces for easy maintenance
Replace corridors with circulation spaces
Include perimeter fences outdoors
Add acoustic baffles and industrial grade drywall (3 layers up to 6ft high) 
 Design Consideration

 

Gaines et al., 2016

Specify robust materials with a lack of choking hazards for furniture, finishes, and equipment
Use carpet to minimize acoustical reverberation
Provide fixed furniture for predictability in bedrooms
Have spatial sequencing to promote predictability and routine patterns
Specify individual climate controls and operable windows within rooms 
 Design Consideration

 

 

 

 

 

 

 

 

 

 

Ahrentzen et al., 2009

 

 

 

 

 

 

 

 

 

Ahrentzen et al., 2009

Provide predictability in the environment, demonstrated through transparency in special sequencing
Provide smooth transitions between rooms and uses
Provide clear visual access into and between rooms
Specify a change of material to indicate change of use 

Separate high stimulus areas with low—input transition zones

 

Include escape spaces

 

Include active and quiet spaces within common areas
Design hallways wide to accommodate people in wheelchairs
Keep hallways and flights of stairs short
Specify individual climate control and ventilation fans in bedrooms
Specify durable finishes according to the intended use
Include a fence to inhibit wandering or access from unwanted visitors
Use color coding to indicate location, function, or activity

Use color palettes avoiding bright, primary colors

 

Avoid using high-heat, fluorescent, and halogen lightbulbs
Use indirect lighting to reduce glare 
Avoid carpet with a strong weave or pile to avoid trip hazards
Choose quiet HVAC systems and other appliances
AuthorDesign Consideration

 

 

Kanakri et al., 2017

Develop appropriate instructional, independent, recreation, and leisure areas
Specify perimeter fences outdoors

Lower ceilings to decrease acoustics

 

AuthorDesign Consideration
Shabha & Gaines, 2013Incorporate indirect and diffuse lighting 
AuthorDesign Consideration
Kinnaer et al., 2016Display order and definition in planning of rooms

Table 1. ASPECTSS™ Framework: Design Considerations Relating to Autism

In all spaces, it is important to provide durable finishes. For example, light fixtures should be covered so that an object thrown at the light source will not break it. A sprinkler system should be concealed or covered with a wire cage to minimize damage or activation due to blunt force. Hard surface flooring can be easily maintained by clients and guests who may urinate or defecate on it, while adding tennis balls on the legs of chairs and tables can minimize the damage to hard surface floors from moveable furniture. Mobile and adaptable furniture facilitate flexible, boundary-defined areas within a larger classroom environment (Warman, 2019).

The structure of walls around an environment can greatly affect the sound qualities within the space. In the children’s spaces, there were several suggestions to address acoustics within the environment. For example, sound-absorbing panels can be installed over drywall or suspended from the ceiling (Warman, 2019). Using carpet instead of vinyl composite tile decreases sound reverberation (Gaines et al., 2016). Use of two layered staggered studs within walls with one-layer housing sound-absorbing insulation, and two sheets of drywall outside each stud enhance sound insulation. In addition, staggering doorways within the corridor can eliminate direct routes for sound (Gaines et al., 2016). The use of lowered ceilings creates the most ideal acoustical conditions (Kanakri et al., 2017).

Within the children’s play space, low-level dividers can be used to set spaces apart within the classroom or, when possible, access should be made to external environments for recreation, physical education, social development, and academic learning. A universally designed playground should provide access to at least 70% of all play equipment by children who have sensory or developmental disabilities.

A portion of the facility was designed for long-term residence of users with ASD. This environment would suit either lower functioning residents with ASD or higher functioning individuals who wish to remain connected with parents or other equivalent caregivers who themselves require assistance with daily living within the facility. Giving residents an opportunity to decide when, where, and how much they want to mix with others in their group living situation is one way to respond to their need for control. This ensures that individuals have a quiet space for sleeping, doing homework, etc. to help them to remain focused (Gaines et al., 2016). Within the bedroom, it was suggested to provide fixed furniture in defined configurations, such as built-in cabinetry, to assure occupants that some aspect of a setting is predictable and not going to change (Gaines et al., 2016).

Designing for Aging Adults 

In the U.S., it is estimated that ~70% of people with early-to-moderate dementia live at home, and that this percentage remains high (64%) for 

those with advancing dementia. Many of these adults living at home endure more pain, higher levels of anxiety, have higher fall rates, and have more complex or unaddressed medical needs than their counterparts living in residential care or nursing homes. People with dementia benefit from consistent and predictable environments and caregivers (Harrison et al., 2019) and could benefit from the care provided in an assisted living facility. The importance of the environment as a provision for care and support of aging adults was recognized at least five decades ago by Pastalan et al. (1973). Pastalan’s et al.(1977) work is pivotal in that it is perhaps the first behavioral research technique to focus on bridging the gap between research and practice, e.g., the designer/architect’s need for anecdotal experiences linking the physical environment to human responses and abilities vs. the rigors needed for the science of research. This established an important framework for use by interior designers and architects referred to as empathic modeling (Clouse, Wood-Nartker & Rice, 2019).

In the Empathic Model, researchers modified their senses and developed recommendations for visual characteristics based on their experiences that architects, designers, and caregivers should consider when creating environments for older adults as shown in Table 2. Aging adults are sensitive to blues, greens and violets and need to avoid some color combinations. Glare was the single most difficulty encountered and there was a decreased ability to adapt quickly to light and dark, creating a need to avoid extremes in contrast. When intense colors were adjacent to one another, they became visually unstable creating a hazard when negotiating stairs or when distinguishing floors from wall surfaces (Pastalan et al., 1973).

AuthorEnvironment Should:

 

 

MCSS/Zgola, 

1990

Be structured & stable

 

Provide environmental routines (association of activities with certain locations)
Serve as a (memory) cue
Facilitate orientation
Provide security
Promote recollection
AuthorEnvironment Should:

 

 

Pynoos et al, 1989 

Promote dignity and independent functioning 

 

Provide appropriate sensory stimulation
Provide security and safety
Provide appropriate level of activity/task
Provide a home-like and familiar atmosphere
Provide for individual control and privacy
Create opportunity for socializing

Be flexible and adaptable in supporting the person’s behavioral and physical needs

 

Emphasize wellness and maintain connection with the healthy and the familiar
AuthorEnvironment Should:

 

 

Schiff, 1990

Be clear and well structured

 

Be stable and familiar
Serve as a cue to behavior
Serve as a cue to memory
Support reality orientation
AuthorTherapeutic goals for good design:

 

 

Cohen and Weisman, 1995

Ensure safety and security

 

Support functional ability through meaningful activity to help maintain competence and enhance self-esteem

 

Maximize awareness and orientation

Provide (carefully regulated) opportunities for (sensory) stimulation and change, avoiding either deprivation or overload

 

Maximize autonomy and control

Adapt to changing needs

 

Establish links to the healthy and familiar, for instance, maintain as many connections as possible with past lives

 

Provide opportunities for socialization
Protect the need for privacy
AuthorA functional environment should:

 

 

Brawley, 1992 

Enable communication and appropriate exercise

 

Minimize agitation
Minimize hazard and risks of fall and injury
Provide nurturing, comfort, and security
Anticipate potential cognitive deficits
Provide cues and assistance for wayfinding
AuthorDesign should:

 

 

Marshall, 1998

Compensate for disability

 

Maximize independence
Enhance self-esteem and confidence
Demonstrate care for staff
Be orientating and understandable
Reinforce personal identity
Welcome relatives and the community
Allow control of stimuli
AuthorSpecial care units should:

 

 

Fleming et al., 2003

Ensure safety and security 

 

Reduce the size of the group and be small
Make the environment simple and provide good visual access
Reduce unwanted and unnecessary stimulation
Highlight helpful stimuli
Provide for planned wandering
Make the environment as familiar as possible
Provide opportunities for both privacy and community
Provide connections to the community, e.g., encourage and accommodate visitors
Make the environment as domestic as possible
AuthorDay care settings should:

 

 

Diaz Moore et al., 2006

Provide safety and security

 

Facilitate functional independence
Promote orientation
Provide sensory stimulation
Facilitate meaningful activity
Promote social Interaction
Encourage privacy
Encourage personal control
Promote continuity of the self
Encourage spirituality
Create architectural delight
AuthorDementia-friendly design should:

 

 

Burton and Torrington, 

2007

Be familiar

 

Be legible
Be distinctive
Be accessible
Feel comfortable
Be safe
AuthorCriteria of a therapeutic environment should:

 

 

Marquardt and Schmieg, 2009

Be legible (logical room syntax, furnishing, fixtures, and fittings)

 

Be familiar (biographical reference, homogeneous and small groups, noninstitutional character)

 

Promote social interaction (privacy, belonging, communication)

Create autonomy (barrier-free, compensating environment, safety and security, orientational cues)

 

Control sensory stimulation (encouragement, avoidance of overstimulation, access to the outdoors)

Table 2. Overview of Design Principles or Design Goals for Living Environments for Persons with Dementia and Aging Adults

Adapted Table 1 from Environment and the Design of Homes for Older Adults with Dementia: An Overview, 2010. Used with permission by van Hoof, Kort, van Waarde & Blom.

Findings showed that hearing losses were impacted by three main things: background noises, sound reflectance from hard surfaces, and high frequency tones (Clouse, Wood-Nartker & Guerin, 2019; van Hoof et al., 2010).  Table 2 shows recommendations related to auditory considerations within the environment.

Research showed that hard to turn knobs and subtle textures affected tactile responses, as shown in Table 2 (Clouse, Wood-Nartker & Guerin, 2029; van Hoof et al., 2010). 

Research by Joseph (2006) suggests that the physical environment of long-term care settings impacts residents, families, and staff through improved quality of life, resident safety, and reduced staff stress. Layout, specialized surfaces and finishes, and wayfinding methods also improve safety. Joseph suggests that wall murals on exit walls; two-dimensional grid patterns on boundary areas; and restricting visibility through immediate exit areas, have been shown to mitigate wandering and escape-driven tendencies for residents with dementia or Alzheimer's. Similar studies by other authors provided additional design recommendations. For example, bright, white light can reduce aggressive behaviors in memory care patients (Hanford & Figueiro, 2013). Non-institutional dining rooms improve food intake among dementia residents and locating communal spaces with immediate access to residential rooms promotes socialization (Cohen et al., 2016). 

Public Spaces (ASD + Aging Adults Crossover) 

In this intergenerational facility, public spaces act as a large-scale transition zone between the childcare and adult resident spaces. As such, these more communal spaces were designed as a bridge between the two communities, allowing users with ASD to learn life skills, provide interaction opportunities with family and friends, and simultaneously create recreation and enrichment opportunities for aging adults. Research-informed design characteristics that mutually benefit adult children with ASD and their aging parents were integrated into Table 3. These characteristics were organized using Mostafa’s ASPECTSS™ framework. The overarching categories included Acoustics (all senses), SPatial Sequencing, Escape Space, Compartmentalization, Transition Spaces, Sensory Zoning, and Safety. For example, the ability to control sensory stimulation and access to the outdoors were two design characteristics shown to affect aging adults and people with ASD. Attention to acoustic control can reduce overstimulation in users with ASD alongside reducing aggression in memory care patients through the thoughtful selection of quiet HVAC systems and other climate controls, to minimize background noise and sound reverberation. Use of strategic building materials, use of neutral and soft colors, and the incorporation of indirect and diffuse lighting (Ahrentzen et al., 2009, Diaz Moore et al., 2006; Gaines et al., 2016; Kanakri et al., 2017; Marquardt & Schmieg, 2009; Mostafa, 2014; Shabha & Gaines, 2013; van Hoof et al., 2010; Warman, 2019) were all shown to have an impact on aging adults as well as people with ASD and so were considerations in the design decisions made within the intergenerational center. 

When planning the interior of rooms, it is important to display order, definition (Kinnaer et al., 2016) and promote routine (Mostafa, 2014). Spatial sequencing was used to promote routine (Mostafa, 2014) by dividing rooms into different zones with each zone having only one function or activity. This allows individuals to begin associating an activity with a specific area, which eases transition between activities, protects routine patterns, and promotes predictability. Rooms that are clearly divided and organized, clear wayfinding, mobile furniture, and a variety of public and private spaces that support socialization support people who are aging and who have ASD and were considerations in planning (Cohen & Wesman, 1995; Diaz Moore et al., 2006; Gaines et al., 2016; Kinnaer et al., 2016; Marshall, 1998; Marquardt & Schmieg, 2009; Mostafa, 2014; Sánchez et al., 2011; Schiff, 1990; Warman, 2019; van Hoof et al., 2010)

The term escape space is more typically associated with children with autism, but the idea is also relevant to aging adults. Rooms designed as distinct zones can flexibly accommodate varying levels of stimuli to allow users to select spaces most suitable to their own desired privacy or socialization level (Mostafa, 2014). For example, the inclusion of reception areas between indoor and outdoor spaces (Mostafa, 2014), the availability of active and quiet spaces in common areas (Ahrentzen et al., 2009), and the availability of specific areas in rooms or entire rooms as a place to retreat to regroup (Ahrentzen et al., 2009; Kanakri et al., 2017; Mostafa, 2014) are beneficial to both. 

Compartmentalization supports the needs of children with autism and aging adults when the division or organization of a room aids in clarifying specific tasks along with the inclusion of the proper stimulus qualities to best facilitate that activity (Mostafa, 2014). Spaces were effectively designed to be flexible so they could be tailored to the specific needs of the parents and children with ASD.

Transition zones are safe spaces that facilitate socialization, which is critical since aging adults in assisted living facilities often suffer from loneliness and children on the spectrum are challenged socially and often desire friendships (Cohen et al., 2016; CDC, 2020). The literature highlighted the use of wide entryways and sidelights (Mostafa, 2014), or the inclusion of circulation spaces (Ahrentzen et al., 2009) to seamlessly transition from one space to the next and were carefully considered in the design of the intergenerational center public spaces. 

Sensory zones within an interior environment should be organized according to their sensory quality and Table 3 shows that areas that provide flexibility in regulating hyper- and hyposensory stimulation (Cohen & Weisman, 1995; Fleming et al., 2003; Marquardt & Schmieg, 2009; Pynoos et al., 1989) benefit aging adults and people with autism. Sensory zoning played an important role in the decision making for location of spaces throughout the intergenerational center.

Safety is essential when designing any environment but is a priority for residents in the assisted living facility. Multiple safety issues were mutually beneficial and supported the need to: minimize fall risk hazards (Brawley, 1992), provide autonomy (Marquardt & Schmieg, 2009), specify accessible spaces (Ahrentzen et al., 2009) and minimize the potential for burns (Mostafa, 2014).

ASPECTSSÔDesign ConsiderationAuthor

 

 

 

 

 

 

 

Acoustics

(All senses)

Space plan to minimize background noise, echo, and reverberationMostafa, 2014; Van Hoof et al., 2010; Gaines et al., 2016; Warman, 2019; Kanakri et al., 2017
Organize areas in logical order, promoting one-way circulationMostafa, 2014
Select soft and neutral color to minimize over-stimulationMostafa, 2014; Ahrentzen et al., 2009
Incorporate indirect and diffuse lighting Ahrentzen et al., 2009; Mostafa, 2014; Shabha & Gaines, 2013
Use matte and non-reflective finish surfacesMostafa, 2014
Provide appropriate sensory stimulationPynoos et al, 1989
Facilitate orientationMCSS/Zgola, 1990 
Provide (carefully regulated) opportunities for (sensory) stimulation and change, avoiding either deprivation or overloadCohen and Weisman, 1995
Allow control of stimuliMarshall, 1998
Reduce unwanted and unnecessary stimulation Fleming et al, 2003
Allow for individual climate control and ventilation fan in each bedroomAhrentzen et al., 2009
Avoid using high-heat, fluorescent, and halogen lightbulbsAhrentzen et al., 2009
Choose quiet HVAC systems and other appliancesAhrentzen et al., 2009
Use durable finishes specified according to the intended useAhrentzen et al., 2009
Provide individual climate controls and operable windows within rooms Gaines et al., 2016
Add acoustic baffles and industrial grade drywall (3 layers up to 6ft high) Warman, 2019
Provide ability to control sensory stimulation (encouragement, avoidance of overstimulation, access to the outdoors)Diaz Moore et al., 2006; Marquardt and Schmieg, 2009
ASPECTSSÔDesign ConsiderationAuthor

 

 

 

 

 

 

 

Acoustics

(All senses)

Space plan to minimize background noise, echo, and reverberationMostafa, 2014; Van Hoof et al., 2010; Gaines et al., 2016; Warman, 2019; Kanakri et al., 2017
Organize areas in logical order, promoting one-way circulationMostafa, 2014
Select soft and neutral color to minimize over-stimulationMostafa, 2014; Ahrentzen et al., 2009
Incorporate indirect and diffuse lighting Ahrentzen et al., 2009; Mostafa, 2014; Shabha & Gaines, 2013
Use matte and non-reflective finish surfacesMostafa, 2014
Provide appropriate sensory stimulationPynoos et al, 1989
Facilitate orientationMCSS/Zgola, 1990 
Provide (carefully regulated) opportunities for (sensory) stimulation and change, avoiding either deprivation or overloadCohen and Weisman, 1995
Allow control of stimuliMarshall, 1998
Reduce unwanted and unnecessary stimulation Fleming et al, 2003
Allow for individual climate control and ventilation fan in each bedroomAhrentzen et al., 2009
Avoid using high-heat, fluorescent, and halogen lightbulbsAhrentzen et al., 2009
Choose quiet HVAC systems and other appliancesAhrentzen et al., 2009
Use durable finishes specified according to the intended useAhrentzen et al., 2009
Provide individual climate controls and operable windows within rooms Gaines et al., 2016
Add acoustic baffles and industrial grade drywall (3 layers up to 6ft high) Warman, 2019
Provide ability to control sensory stimulation (encouragement, avoidance of overstimulation, access to the outdoors)Diaz Moore et al., 2006; Marquardt and Schmieg, 2009
ASPECTSSÔDesign ConsiderationAuthor

 

 

 

 

Escape Space

Designate specific areas in a room or entire rooms as escape spaceAhrentzen et al., 2009; Kanakri et al., 2017; Mostafa, 2014
Provide reception areas between indoor and outdoor areasMostafa, 2014
Allow for customization within these spaces according to the needs of the userMostafa, 2014
Provide covered awnings in outdoor spacesMostafa, 2014
Select matte and non-reflective finish surfacesMostafa, 2014
Include active and quiet spaces in common areasAhrentzen et al., 2009
Provide for individual control and privacy Cohen and Weisman, 1995; Diaz Moore et al., 2006; Pynoos et al, 1989
ASPECTSSÔDesign ConsiderationAuthor

 

 

 

 

 

Compart-mentalization

Clearly define zones through carpet squares, colored floor tape, or screensMostafa, 2014
Use a change of material to indicate change of use Ahrentzen et al., 2009; Mostafa, 2014
Specify indirect and diffuse lighting Mostafa, 2014
Select matte and non-reflective finish surfacesMostafa, 2014
Facilitate orientationMCSS/Zgola, 1990 
Allow control of unwanted and unnecessary stimulation Fleming et al, 2003; Marshall, 1998
Incorporate individual climate control and ventilation fan into bedroomsAhrentzen et al., 2009
ASPECTSSÔDesign ConsiderationAuthor

 

 

 

 

Transition 

Zone

Incorporate wide entryways with full-sized doors and operable sidelight windowsMostafa, 2014
Replace corridors with circulation spacesAhrentzen et al., 2009 
Promote clear visual access into and between roomsAhrentzen et al., 2009 
Provide opportunities for socializationCohen and Weisman, 1995
Provide cues and assistance for wayfindingBrawley, 1992
Make the environment simple and provide good visual accessFleming et al, 2003 
Provide (carefully regulated) opportunities for (sensory) stimulation and change, avoiding either deprivation or overload

Cohen and Weisman, 1995; Marshall, 1998

 

ASPECTSSÔDesign ConsiderationAuthor

 

 

 

 

Sensory 

Zoning

Organize “high stimulus” and “low stimulus” zonesMostafa, 2014
Separate loud and quiet spaces Mostafa, 2014
Provide (carefully regulated) opportunities for (sensory) stimulation and change, avoiding either deprivation or overload

Cohen and Weisman, 1995; Fleming et al, 2003; Marquardt and Schmieg, 2009; Pynoos et al, 1989

 

Provide opportunities for socializationCohen and Weisman, 1995
Provide cues and assistance for wayfindingBrawley, 1992
Make the environment simple and provide good visual accessFleming et al, 2003 
ASPECTSSÔDesign ConsiderationAuthor

 

 

 

 

 

 

 

 

Safety

Avoid sharp edges and cornersMostafa, 2014
Consider proper management of hot water via safety fittings which are child-proofMostafa, 2014
Include perimeter fences outdoorsWarman, 2019; Kanakri et al., 2017
Specify robust materials with a lack of choking hazards for furniture, finishes, and equipmentGaines et al., 2016
Specify wide hallways to accommodate people in wheelchairsAhrentzen et al., 2009
Keep hallways and flights of stairs shortAhrentzen et al., 2009
Inhibit wandering or access from unwanted visitors, e.g., fenceAhrentzen et al., 2009
Avoid carpet with a strong weave or pile to avoid trip hazardsAhrentzen et al., 2009
Provide security and safetyBurton and Torrington, 2007; MCSS/Zgola, 1990; Pynoos et al, 1989
Cover light fixtures and sprinkler systems for safetyWarman, 2019
Minimize hazard and risks of fall and injuryBrawley, 1992
Provide for planned wanderingBrawley, 1992
Provide autonomy (barrier-free, compensating environment, safety and security, orientational cues)Marquardt and Schmieg, 2009

Table 3. Design Considerations which are both for Dementia and Autism

Methods

Autism affects whole families. Developing an intergenerational facility for aging parents and children with autism allows children to become familiar with the facility while they attend the childcare center when they are young and living at home with their parents. As these parents age and themselves need assistance, the assisted living section of the facility can provide residential support to both the parent and child (who now may also be an adult) to minimize the effects of familial fracture. To address this need, the Green House model was applied as a framework for facility planning. 

To prioritize design characteristics to be implemented in the planning process, the information from the literature review was organized into three categories. The first category organized characteristics that are effectively incorporated into the environment for people who have autism, as shown in Table 1. The second category organized characteristics that are effective to incorporate into the environment for neurotypical aging adults, as shown in Table 2. Features common to both Table 1 and Table 2 were combined together to form Table 3. Mostafa’s seven ASPECTSSTM was used as a basis for organizing the information. 

This plan is not meant to be a “one solution fits all”, but is meant to expand designers’ and architects’ thoughts toward the development of a new residential housing and childcare solution for parents who have a child with autism. Design, construction, furniture and finishes, and building technology can be a support or a hindrance to autonomy (van Hoof et al., 2010). These environmental recommendations focus on research-informed characteristics that can facilitate support for the diverse needs of aging adults and people who are on the autism spectrum. 

Results

Research suggests that there are shared design characteristics that can benefit aging adults and persons with ASD, as shown in Table 3. These characteristics were organized using Mostafa’s ASPECTSS™ framework and then applied to one example of a shared communal space for this intergenerational facility, as shown in Figure 6. This communal space shows the design and architectural community one approach for creatively developing a new housing solution that is safe, flexible, well-defined and accessible for children with ASD and their parents. Although there are other environments that could meet these needs, the authors felt that it would be helpful to show one plan that identified research-informed design characteristics that could easily be applied to other facilities, as shown in Figure 6. 

Figure 6: Intergenerational Facility Plan.

This figure includes a plan view of this intergenerational facility in which design characteristics were applied. In a general sense, the childcare for children with autism is to the left, shared spaces including recreational and group activity areas are centralized, and the living pods catering to aging adults, both with autism and neurotypical residents are to the right. Mostafa’s ASPECTSSTM principles were considered in a more overarching sense on the plan as well. For example, SPatial sequencing was used in locating communal spaces between childcare and resident areas, allowing for an easier transition from either end. 

Discussion

Implications to Practice

As 79% of adults with ASD age 18-30 live with their parents (Ahrentzen & Steele, 2009), there is an emerging need to consider housing solutions that not only provide for the specific needs of individuals with ASD and aging adults but to do so in a way that creates a symbiotic relationship between these two groups in a singular facility.  This paper described how best design practices (largely informed by the Green House model and Mostafa’s ASPECTSSTM framework) were applied to the design of an intergenerational center. There is a clear need for such investigation, as the number of people in our society who are affected by ASD and who are aging is on the rise. Table 1 shows research-informed design characteristics for people on the spectrum while Table 2 shows principles for people who are aging. There is some overlap between the two lists, which was presented in Table 3. This criterion was applied to the intergenerational facility plan, as shown in Figure 6. The importance of developing a housing solution that looks to the needs of aging parents of children with autism is crucial in offering more opportunities to families affected by ASD. Combining design decisions that provide the necessary care to both while allowing families to stay together could be one unique solution. 

One limitation of this work is that many of the characteristics that were identified in the literature review include design features that were recommended for aging adults and/or people with ASD. However, applied and systematic testing is scarce, due to the cost of building and retrofitting to better accommodate needs. Often, recommendations that are presented in source materials were shared with researchers from practical experiences by housing and service providers (Ahrentzen & Steele, 2009). 

In addition to being different from standard assisted living facilities, this Green House planned intergenerational facility incorporates guidelines from Mostafa’s (2014) ASPECTSSTM (Acoustics, SPatial sequencing, Escape space, Compartmentalization, Transition zones, Sensory zoning, and Safety) which are beneficial to neurotypical users and those on the spectrum for creating flexible, safe, and specialized spaces.

One contribution to the body of knowledge was expanding the definition of ASPECTSSTM Acoustics to include all senses, and to identify environmental characteristics that are consistent across facilities for people who are aging and who are on the spectrum within Thomas’ Green House model. We created a residential scale housing solution for 6-10 people per unit that promotes stable and supportive family relationships. Acoustics do not only affect those on the spectrum who have sensitivities to sensory stimuli, but also benefit neurotypical aging adults since older adults in large spaces frequently struggle with sensory issues related to vision, sound and touch (as shown in Table 2). With regards to furniture and finishes, it is clear that designers and architects must remain mindful of the sensory impact of texture, color, etc. in material and finish selections and the impact of these decisions on neurotypical people and those with ASD. 

SPatial sequencing arranges spaces in logical order, usually one-way circulation, and utilizes movable furniture to arrange spaces according to the desired use. While this can provide routine and predictability for individuals with ASD, it can also do the same for neurotypical aging adults. Escape spaces provide a break from overstimulation for individuals with autism and can also act as a calming room for others. Even neurotypical individuals can experience overstimulation throughout the day and can benefit from having a place to retreat to compose themselves. 

Compartmentalization of spaces provides specific purposes to each space which can be further customized for each user. This also can benefit neurotypical aging adults because having clearly defined areas for different activities, marked by arrangement of furniture or use of materials, can clarify the intent of each space, which aids in orientation. Transition zones can aid people moving from high stimulation to low stimulation areas and are beneficial in creating opportunities for recalibration, such as social spaces between bedrooms and classrooms. Sensory zones can also aid neurotypical aging adults in the same way, since compartmentalization has specific areas with different purposes. Safety is the final component of ASPECTSSTM which is universal to all users, regardless of age or ability. This is particularly important when considering both people with ASD as well as aging residents who often have declining physical health and increased sensory needs.

An intergenerational facility would allow a child with ASD to grow comfortable within a childcare setting, then transition across spaces as they age. This could allow for them to eventually reside in the assisted living facility themselves when their parents are in need of supportive care, simultaneously maintaining close family relationships. 

Future research needs to look at the evidence-based effects of these design characteristics to determine to what extent these are applicable to the changing and diverse needs of aging adults and people with autism. Both have cognitive impairments and sensory impairments, and the ability to measure the impacts of these characteristics experientially will be beneficial. Despite the limited scientific evidence of the effectiveness of these characteristics, many hold promise.

Conclusion

Findings show numerous overlapping design criteria for people with autism and aging adults that can lead to effective environmental solutions for both. When integrating Mostafa’s ASPECTSSTM framework into the Green House Model, the application of design choices within this housing solution demonstrates that appropriately designed spaces can positively impact persons and families with autism, regardless of age. It is the goal of the authors that these guidelines be utilized as a design tool by families and design professionals for assessing design characteristics that can enhance aging adults’ ability to maneuver within the built environment, while simultaneously supporting the diverse needs of their children with autism spectrum disorder. This facility type has the potential to minimize family fracture since aging parents are supported in their ability to care for their child with autism. This design is unique in that it takes a lifespan approach, considering the changing abilities and needs of diverse users across time. Enhanced knowledge can serve to support the family unit while providing an environment that is safe and suitably designed. 

Declaration of Conflicting Interests

The author(s) declared no potential conflicts of interest with respect to the research, authorship, and/or publication of this article.

Funding

The author(s) received no financial support for the research, authorship, and/or publication of this article.

References

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